Monday, June 17, 2013

Two weeks :)

Wow, time has really flown by.  Things have been quite similar and quite different this round.  As I headed into surgery on June 3rd, and as I was laying on the flat chair/bed/cot thing looking at the ceiling with the oxygen mask on, knowing in moments I would zonk out ;), I realized what a different feeling it was this time internally.  This time, there would be changes, but no DCIS, no mass that needed to be taken out, no fear that certain parts of the skin would need to be removed, no concern about cancer in the lymph nodes, no saying goodbye to the left side, just hello to the new, no hospital but a surgical center.  There was no snow on the ground, it was not cold nor dark outside, but rather warm, green, and with obvious signs that the sun was beginning her day here.  This time, mom, Tim, and Mel were with me, and I would wake up to dad being with me too.

We arrived around 7am, and I believe the surgery was some bit after 8am.  After being under general anesthesia, I awoke around 1:30pm-ish.  I want to write how it was, but no worries or feeling bad.  Really, my experience was quite good.  At any rate, as I awoke, I felt incredible pain, as I had after the first surgery, but somehow this felt worse, and perhaps that is because of all the nerves working on the right side that may not have been as engaged on the left side that first time.  My body was shaking a good bit, perhaps from the anesthesia, but it felt a bit rough and I didn't seem to be able to stop myself from crying.  After a bit, I was moved to a place where my mom and dad came, and that helped - I was so surprised and glad to see dad, and happy to focus on something other than how I felt.  Dad and Mom were wonderful, and then so were Tim and Melanie.  They were all cute and cheerful and got me through that first while.

When I was good to go home, everyone was so helpful.  I was shocked at how soon I could leave and really impressed by how my body seemed to be able to make the location change.  It was much more difficult trying to move around after that first surgery.  We made it home and dad and Tim helped me into my bed.  Dad became my pillow engineer throughout the week, and everyone helped me be as comfortable as possible.  Getting up and out of bed required lifting assistance from others, eating also did since I was in and out of it a good bit at first, but still needed to eat something in order to take my medications.  It was kinda cute with dad feeding me those first few days; I asked him if it reminded him of feeding me as a little child :)

It is so sureal to go through surgery and have others taking care of you, I can't explain it, but I feel so grateful for everyone's help, so grateful.  I feel grateful for a dad who woke up during the middle of the night to give me pain medication, who kept alarms going for my pain and antibiotic meds, and who was always checking my water and ice bag needs, and helped me get up and down.  It was sweet having Tim sitting on the floor reading quietly as I rested, being fed ice cubes and water by him and dad, having Mel bring over a pillow of hers and visiting with her, having my ever considerate and loving mother always checking my food needs, helping me in the bathroom, washing my face, brushing my hair, helping me in the shower, etc.  I loved going on walks with my parents later in the week, spending time with them, with Tim, with my aunt and uncle's family watching a movie together...something I rarely do.  Meals brought by others were so generous, and messages, texts, visits, and calls to check up on me were so thoughtful and so kind.  It was a gift having mom help me organize my room, me not doing much, and her doing pretty much everything so that I could feel more clear with less clutter.  Having my parents with me was something I just can't adequately describe.  I will always treasure it.  It was sweet, it was enlightening, it was tender and it was full of growth.  I loved my discussions with them; talking with them helped me get through some of the difficult emotions I processed, especially that first week.

Things are so good now.  I'm moving forward and the Lord is really helping me gain strength every day.  What a gift it is to walk, run, swim, bike, hike, sing, laugh, talk, move.  What a gift our bodies are!  What a gift it is to take time to sit, sleep!, listen, pray, read, be still.  What a gift family, friends, neighbors, and acquaintances are.  There is soooo much good, we each have to look for it, but as we do, we will see more, and doors that close will reveal doors that are opening.  I love how my mother keeps reminding us to be thankful for the difficult, the painful, the uncomfortable, the things we struggle to overcome, as well as alllll the good.  The Lord has a plan for each of us.  I'm striving to understand my plan, and looking for ways to discover it, fully live it, and keep lifting up my eyes to Him.  Continually, I see my "lackings", but that's all part of it.  I will be grateful for them :)

What a good situation I've been given, what a good reminder of my blessed life.  Thank you to each who has touched my path.  Thank you to my Father in Heaven who continues to preserve and bless me with far more than I could ever deserve.

Monday, June 10, 2013

One Week :)

Just as an update, I'm doing better, improving every day :)  It's a process and I have to be patient with myself, but that's good for me to learn :)  It's definitely faster this time than last time.

Loves to anyone who reads this.

Sunday, June 2, 2013

Moving Forward and Onward :)

In case any of you are wanting the details of tomorrow's party, I mean surgery, here you are :)

Location: Utah Surgical Center
Address: 3715 West 4100 South, West Valley City
Check in at 7am, surgery at about 8am
Stay: til about 12 noon, release same day - awesome, no?  :)

This is the last part of the reconstruction process, in case you're wondering.  I'll be home for the next week with my amazing mom and dad.  They both have miraculously made it work to come and help/support me.  Feeling really grateful :)

Thank you all for your care, concern, prayers, thoughts, messages, cards, flowers, visits, assistance, etc.  It is impossible for me to adequately express my gratitude.  I truly have a blessed life.  Loves to each of you!

Sunday, May 19, 2013

Day 81 - 11 Weeks

In response to Angelina Jolie's Op Ed in the New York Times, May 14, 2013, KSL News ran her story, including a few stories from women here in Utah. They found out about me through a connection in the choir, and contacted me.  Honestly, it happened so fast, I didn't really process who was going to see it, but just knew they wanted to hear my story, so I did an interview with Nkoyo from KSL.  She was super awesome to me, so nice and it was good to talk with her.  They took a couple clips from it and included it in the spots below.


* TV spot was use on the radio but I don't have a copy of that

* Deseret News article, just to be clear though, I did not test positive for the BRCA1 gene, my test thankfully came back negative.  Hopefully this article doesn't come across the breakfast table of any of my doctors!

* KSL News' mini-section of the bigger article, it's called "Utah women share their experience of a mastectomy" by Nkoyo Iyamba. They got the BRCA1 gene info correct, but it's interesting, I did not "argue against such drastic measures" like they say in the article....ah, the news, good ol news reporting ;)

Thursday, April 18, 2013

Day 50 - 7 Weeks

Life is so good, the Lord is so good.  Time has flown by so fast, especially since returning to work, I can hardly believe it's been 7 weeks.  Things are going really well, everything is so much better, as of last Thursday, 6 weeks, I felt this new surge of energy and lightness that reminded me so much of my old self.  This week, it has felt like whatever was dragging a bit, left for good.  There have been so many blessings, and that is a huge one for me.  Yes, I still need to watch it not to overdo it, but truly, every aspect of this experience is on the up, on the mend, and moving forward.

And last night, I met one of the wheelchair participants of this recent Boston Marathon held earlier this week, April 15, Patriot's Day.  It was his first Boston, but he's done countless others through the years.  He is such a beautiful soul, sweet, gentle, without guile, and talking with him touched me so much.  He was a little shook up by the 'chaos' as he called it - he'd finished the race and when the bombs went off, he looked back and saw everything from a booth he was visiting.  Meeting this good man, really inspired me, I can't even explain it, but there was such a good feeling with him, I feel so much a desire to live life to the fullest, to be at peace, and to appreciate and learn from people like him that are so good, so sweet, unassuming, gentle and kind.  Each of us is a child of our Heavenly Father, we're each brothers and sisters.  I know this so deeply within me, and each time the Lord allows me to meet one of his children like Nathan Crowton, I can't help but feel a renewed desire to truly live, to appreciate all around me, and to live with beautiful gratitude as is so evident in Nathan's countenance. 

Friday, March 29, 2013

Day 29 - 4 Weeks

As we head into Good Friday and Easter, I thought I'd give a few updates:
  • The rest of my tape came off today and I'm told things are healing up quite nicely
  • My scar is pretty sweet
  • My arm is starting to gain noticeable strength, almost daily now
  • The shoots and shots of pain, the aches, and other fun things are also decreasing
  • Though it seems I'll be tight in my chest area for a while yet, it's better, not as uncomfortable
  • Mobility has taken a huge turn upward for the better :)
  • I'm approved for using a stationary bike and I'm excited to give that a try!
  • My memory seems to be a little slippery - especially when I try to recall things from those first few weeks :)  But hey, that's cool :)  I love drugs ;)
  • Energy is on the rise, but somehow, I still seem to need soooo much sleep and I still seem to have waves of energy and then realize the wave has passed ;)
  • People are still generously checking in, bringing me cards and/or flowers, etc.  There is no one more spoiled than me and I appreciate it so so much
  • I'm back at work, part-time - I'm blessed with an amazing boss and co-workers - they've been incredible to me
  • One of my most favorite things in this world is sleeping in my bed, and then waking up with my head against my great pillows and just deeply appreciating comfortable rest - man, I'm blessed
  • And...my sister Mary comes home from her mission this Saturday!  That's enough to boost anyone's immune system :).  So grateful for her energy and love for our Savior.  So grateful for her example to me.
Happy Easter to you.  I'm grateful for Easter.  It is one of my absolute favorite holidays.  Without it there would be no Christmas and there would be no hope for life with Heavenly Father after this life is over.  It also has increased meaning for me this year as I remember that each of us who have ever lived and ever will live will be resurrected and have a perfect body someday because of the gift of Christ's resurrection.  We are so blessed.

Loves to each of you :)

Monday, March 18, 2013

Day 19 - My Mother & Being Thankful

Updates :)
  - Stitches are out
  - Tape is off
  - Started the gradual expander element of reconstruction
  - Learned what I can and should not do with my little self
  - Doctors both say I'm healing really well

Special Update :)
  - During last week's cancer conference at the hospital, a panel of doctors, including two radiologists, examined my case. One of the radiologists even went back to his office and did a literature review to make sure he was giving us the most up-to-date and accurate information.  So nice.  Even though the area was wide and touched the skin, studies show that the risk for reoccurrence doesn't change if radiation is done with DCIS.  They even checked a most recent study at Harvard which supported this finding.  So... :) big smiles and a grateful heart, I don't need to do radiation.  What a blessing.  I feel there have been so many blessings, and today, after hearing this news, once I was home, I just cried.  I feel I've been extremely blessed during this experience, so blessed.

My angel mother did leave last Thursday, thank you for everyone who has checked to see how I'm doing.  Throughout this entire experience, mom has reminded me to be thankful.  "Thank the Lord for every good thing.  Thank Him for every hard thing, everything that's difficult, for the pain, for all the growth."  She has encouraged me to be thankful for everything, no matter what it is.  She has found incredible peace and happiness doing this.  I feel so much awe for who she is and feel grateful for her example of humility and gratitude.  I will be grateful every day of my life that she is my mother, and that I am her daughter.  Through this experience, I have leaned on her so much.  I, the independent one, has had to admit my need of others :), especially of her and my Heavenly Father, and I thank Him that He gave me this experience, the opportunity to spend this time with her.  She is an angel of peace.

As things geared up for her leaving, I started feeling anxious.  I felt like I'd just had a child or something ;) and was so emotional, not wanting her to leave.  She encouraged me to thank the Lord for the difficult feelings I felt.  We looked at having her stay longer, but we both prayed about it and felt good about her departure date.  We have some sweet memories of that last night she was here as I read to her from "The Continuous Atonement" by Brad Wilcox, and she made soups, drinks and Sauer Kraut for me :), all the while following along almost better than me to the book!  She's amazing.  When she left, it did feel quiet, I missed her terribly, and yet I knew it was okay.  I slept for a good while and then let myself feel the peace the Lord gave me as I took care of things around the house.  Since she left, my aunt and many others have been so so helpful in giving rides and helping me if I've needed anything.  I've had wonderful, thoughtful visitors, and even a sweet experience with the Sacrament being brought to me.  Where I felt unable to go forward without my mother, the Lord has picked me up and carried me.  He amazes me.